Two years already

Dearerst Leo,

Today was your second birthday, which sadly coincides with your 2nd death anniversary. I took the day off work because I was not too sure how I would feel. 

The day was pretty nice actually.  Having your brother with me does make this day easier. Him and I spent a nice day doing lots of activities. He kept me busy, he kept me happy and smiling. Your dad is out of town this week, which worried me. I didn't want to spend the day alone - but I didn't. Your grandma and little brother were here with me.  In the evening, I bought you a cupcake, we lit two candles and Xavier and I blew them out for you. We also lit a candle by your picture frame.

But I think the most special moment was at around 9:15pm, when your little brother woke up. You passed away at 9:21 Leo...well, that's what it says on your certificate, but I know you actually passed away a little before that. I was holding you in my arms and I remember hearing your last breath. Maybe I'm reading too much into things, but I have a feeling your little brother woke up to spend some time with me, knowing I needed him to be with me. 

Together, we looked at your picture book. It's sad to see some of your pictures, to see how small, fragile and helpless you were. Tears were streaming down my face, but Xavier kept looking at me and putting his hand on my cheek. Isn't that amazing for a 7-month old? I gotta say Leo, you have a wonderful little brother and I have a feeling he can feel you somehow. 

I wanted to make today special but here I am at the end of the day and I  feel I haven't done enough to honor you. How do you celebrate a son that has passed? I'm still trying to figure it out. I also wanted to take the time to write to you here on the blog, but I don't feel I'm doing such a great job. 

Leo, all I really want you to know is that you are missed and you are loved. Of course I wish you were here blowing out your candles on your own; but you can't. So all I can do is  hope that you are looking down on us and smiling. I hope you can feel our love for you.

Happy birthday my love,

Maman

October is Pregnancy and Infant Loss Month

My sweet Leo,

It has been way too long since I last wrote to you. I often think of you and of all the things I want to tell you, but these days, I seldom find the time to sit down and just be with you. 

So much has happened in the last few months. Your little brother is now 6 months old and he is precious, just like you. Seeing him discover the world brings me so much joy but it also makes me wonder if you would have been the same. Would you laughed if I squeezed your thighs like your brother does? Would you drooled non-stop over my shirt like your brother does? Would you have had a beautiful smile like him? 

I've said this before and it is still true: grief is such a complicated feeling. I know your little brother wouldn't be here if you had survived - yet, I can't help but wish I had both of you with me right now. 

October is Pregnancy and Infant Loss Month. There's lots of things on social media these days - many of the loss friends I have met in the support group are posting about their journey of grief and healing. Last year, I posted every single day. I wanted people to be aware that infant loss happens, I wanted them to know how to help others. I still do. But somehow, want to talk less about losing you and more about having you in my life. 

I finally put a picture of you on my desk at work. You're in a white frame, right beside a picture of your brother. So far, only one person has asked me about you. I want to be able to tell others: "This is Leo, my first born". I want to tell them that you were born and not just that you have died. 

Your birthday is coming up and I'm starting to get a little nervous. I can't believe it has almost been 2 years. You would have been 2 - a little toddler running around. That thought makes me smile. Your dad is going to be on a business trip on your birthday. I initially thought it would be alright, but I'm having second thoughts. I'm not sure how it will be to 'celebrate' you without him. Your maternal grandma will be here though and I have taken the day off work. Last year we invited 20 friends and had a gathering of love. This year, I think I want it to be quiet, but I would still like to do something special for you, my little boy. There will be no balloons, cake, gifts, bouncy houses - but there will be lots of love, I promise you that. 

You know Leo, it's true that the pain has been a little easier to manage. I can go weeks without crying - but when there's not a day that goes by without me thinking about you. 

I love you,

Mommy

A Bittersweet Mother's Day

Dear Leo,

This was my second Mother's Day, but it was the first in which I had a child to celebrate with. A living child that is.

Last year, at this time, I was celebrating both Mother's Day and my birthday on the same day - talk about a slap in the face. How can I celebrate my birth on a day where I'm just reminded of your death?

This year, I thought it would be different of course. I now have your little brother Xavier with me. I have a baby to touch and hold, to kiss and hug. It's easier to love someone that you can see and touch. Don't get me wrong; I love you too Leo but it's a more challenging kind of love because I can't show it to you and I don't know if you'll ever know or understand how much I love you. 

So on Mother's Day this year, I woke up happy, holding your little brother in my arms and thanking the heavens for his life. I did want to honor you too, so I took Xavier to the picture frame that holds your picture and told him "let's say hi to your big brother Leo". I kissed your picture and broke down. How unfair is it that I am stuck kissing an inanimate object instead of your cheeks? That is not enough for me, kissing your picture is simply not enough. 

I was surprise at my reaction, to be honest. I haven't cried for you in a while. Perhaps your little brother has been taking all of my focus...or perhaps I have just been feeling stronger these days. I don't know what happened, but the tears just came and I let them flow. It was a weird feeling. At one moment I was happy having a nice brunch, opening my gifts...and the next I was feeling sad that you weren't here. It's not normal to cry on Mother's Day, I know...but it also doesn't feel normal to be celebrating it without you. 

I know it's a little unfair to your brother that I'm sad. This year, he doesn't quite understand much yet, but I certainly don't want him to see me sad in the years to come when he celebrates this day with me. To be honest Leo, I'm not sure how I will feel next year or 10 years from now. I will always miss you, that's for sure. Perhaps it will be easier to spend Mother's Day without you down the road...perhaps it won't.

I sometimes dream of  you and your brother making a mess in the kitchen, trying to prepare me a Mother's Day breakfast....but that day will never come. What's also messed up is that if you were here with us today, your brother might not be. I guess that the present scenario is the only way that I could be a mom to both of you. 

You are the one who first made me a mother. I hope that somehow you can feel the love that I have for you.

Mom

Rainbow after the storm

In the baby loss community, a rainbow baby is a baby that is born following a loss (miscarriage, stillbirth, neo-natal death, etc.). Well, my rainbow is here! Welcome to the world my sweet little Xavier!

I kept this pregnancy pretty quiet. It's been quite a roller-coaster ride, with lots of fear, stress, anxiety...First, came the struggle of getting pregnant. I was incredibly impatient and every failed attempt knocked me down and came with a dangerous amount of self-pity. 

Then, it happened. In July, I finally read the word "pregant" on the digital pregancy test. This time, the pregnancy was so different. We were excited, of course, but cautious. We, unfortunately knew all too well, that pregnancy doesn't necessarily equal baby. The doctors make you wait weeks before the first appointment. Those weeks are so difficult. I had no way of knowing if my baby was alive. When we went to the first dr appointment, my first question was "is there a heartbeat?". I never doubted that when I was expecting Leo. When the ultrasound showed a healthy heartbeat and a normal fetus, tears of happiness and relief came rolled donw my cheeks. And then I told myself in an encouraging tone "alright, another 30-something weeks to go". 

Every appointment, every medical test, every lab result came with a sense of worry first and then relief. I refused to buy this new little baby anything - in fact, my first purchase for him came only a week before he was born. I didn't want to risk purchasing a bunch of items and then being stuck with a room full of baby stuff but no baby to use any of that stuff.  And that is why I refused a baby shower. In a way, it may not make much sense, but so much of what we went through makes no sense....so I don't feel I needed to explain myself to all those that looked at me incredulously saying "you haven't bought anything yet?" 

We also decided to only share the news of the pregnancy with the few friends and family who were really there for us when we lost Leo. Of course, at one point, we couldn't hide it from people who saw me regularly...but our friends and family who don't live in our city only heard about it when we announced Xavier's birth. When Leonardo passed away, I had to make a few painful phone calls and explain to people that my baby died in my arms. Those phone calls were so difficult and I had to do it over and over again. And it wasn't just the phone calls... people would send me messages (email, Facebook, text) or stop me on the streets and ask "so, how's that baby doing?" It was a good day when I was able to answer that question without falling apart. So, it felt right to us to only share the news with those who we knew we could depend on if things were to go south again....

I coped with much of my stress and fears by attending a Pregnancy After Loss (PALS) support group. I had met some of those ladies in the Parent Support group that I used to attend prior to this second pregnancy. I love the women in the PALS group....they understood me like no one else and reassured me when I thought I was going crazy. The wonderful thing about the group too is that 5 of us were expecting and due between March and June 2015. To date, 3 of the 5 have given birth to beautiful and healthy babies. Thank God! :) 

So here I am, with a beautiful newborn in my arms. When he was born, I immediately compared him to Leo...he didn't look much like him and in fact, I think Leo had much finer and cuter features. But there are times, that I see Leo in Xavier. I don't know if that's a good or bad thing. I think I want them to look alike so that I can have a sense of what Leo would have looked like had he lived. But I know that it's unfair for me to expect Xavier to be like his older brother. 

Xavier was born 24 days before his due date. Fortunately, he was strong and weight enough to not need to be placed in the NICU (neonatal intensive care unit). We were told that he had jaundice and though that's pretty common, I had a little freaking out moment where I completely lost it and feared for my child's life. I suspect I will react that way whenever something goes a little wrong. 

Bringing Xavier home was a huge milestone for us. Finally, we get to bring a baby home! He is precious and whenever I look at him, my heart fills with so much love. I hope that I can be a good mother to him despite my continuous journey grieving for Leo. 

Not a proud moment

Just when I start thinking that I'm doing better and that I've figured out this grief thing, I'm struck down again, with tears flooding my eyes and darkeness consuming my heart. 

Yesterday, I got a text message from a friend, sending me pictures of his newborn baby. Everytime I hear that a friend is pregnant or in labor, I say a quiet prayer, hoping that all will go well for the parents and the baby. I worry more than they do. They go into the hospital expecting to leave with a baby in their arms, but I know that that's not always the way the story ends. I know first hand that sometimes you need to hand the cold body of your newborn to the nurse, go home and make funeral arrangements. 

Thankfully, that didn't happen to my friend. I congratulated him, of course, and breathed a sigh of relief knowing that things went well. But despite this happiness and relief, I felt sad. It's hard to explain...of course I wanted them to go home with a healthy baby, but every new beautiful baby that is born brings me back to the question "why did I get to go home with my baby?". I think I narrowed it down to jealousy - I always found jealousy to be such a horrible, pointless emotion. Nothing good comes out of it. It's not productive, it's not healthy, it's just so ugly. It is really hard for me to admit it, but it's true. I'm jealous of all the new parents who have a perfect newborn to hold and love. I'm jealous that they have a normal and beautiful little family. I'm jealous that they get to take pictures of their baby as he or she discovers the world. Most of the pictures I have of my son were taken after he passed away. I have dead pictures of him. That's what I'm left with. 

So, when my friend texted saying that it had been a complicated day for them, I don't know what happened within me. I just lost it. I know that every situation is different and I'm sure it was exhausting, stressful, scary for him...but don't tell me that you had a complicated and tough time at the hospital. If you end up taking your baby home, then you didn't face an ounce of what I went through. Having your child die in your arms is tough. That's a freaking complicated and messed up birth story. I don't know exactly what they went through, but I'm certain in pales in comparison to what we went through. So my reply to him was "at least you have a happy ending". 

I feel bad to have written that. I know he was just sharing his experience with me and as a friend, I should have listened and said the right things. I got bitter and angry and that surprised me. I didn't expect to feel so hurt, but I did. I hate that I wasn't a good friend to him...and I also wish he had been sensitive enough to not send me pics of his perfectly newborn baby and to not complain to me about his experience. 

Sometimes I wonder how long it will take before my happiness for others is not tainted with some sadness, pain and jealousy. I really hate that I can't just fully share in their joy. I was told by my support friends to be easy on myself, to accept that these are my feelings and that I'm still grieving. 

Grief sometimes brings out a side of me that I don't like at all. I'm trying to work through it. I'm trying to get out of this dark place, but it's harder than I thought. This abyss is deeper and darker than I could have imagined. There are days where I see the light and it shines brightly on my face and in my heart. But other days, like yesterday, I feel like I've fallen even deeper and that I'll never get out of it. 

Never Forgotten

Dearest Leo,

We're approaching what would have been your due date: Feb 13. It's so close to Valentine's day and I remember thinking that I would be able to spend it with you, my new love. I'm not sure what to think of the due date though. You were born on Oct 22, 2013 and that will forever be your birthday. The due date though, represents the day we were expecting you to be born, chubby, healthy and mostly, alive. 

I still have a picture of you on my phone screensaver. I often glance at it really fast but yesterday, I stopped myself and really looked - very attentively at your sweet little face. I'm still in awe at how perfect, how beautiful and how angelic you looked. It makes me smile. 

I find that as time goes on, it's harder for me to find ways to truly honor you. People are starting to forget you, they're starting to forget that we lost you. So I mention you when I can. But it's also hard, because in response I get a mix of sympathy and pity. But what I really want is for people to treat you like they would treat any other baby. Ask questions, smile, talk more about you. I do find, however, that the more I talk about you in a casual way, the more at ease people feel. It's something that takes time and I'm ok with that, as long as you never go forgotten. 

I miss you so much. 

A prayer for those who grieve at Christmas

Christmas is my favorite time of year. I have so many fond memories of Christmas eve and Christmas day spent with my family. Those two days were always filled with joy, wonder, laughter, excitement and love. 

Now, my Christmases will be filled with a sense of emptiness in my heart. Knowing that my baby Leo will never experience the joys of the season, that I'll never get to see him excitingly unwrap his gifts and then jump with his open arms around my neck to thank me for his presents. 

But Christmas remains a special time of year for me, despite this empty feeling. I read this prayer on A Concord's Pastor's blog and it brought me some comfort. 

 

Dear God,

There's an empty chair near the tree,
an ache in our hearts
and tears on our faces...

We may try to shield one another
from the grief we bear
but we cannot hide it from you...

We pray for Leonardo
whose presence we miss so much
in these days of peace and joy...

Open our hearts and minds
to the healing, the warmth,
the light of your presence...

We pray, Lord, and we trust 
that those we miss have found the place
you prepared for them, their home,
within your heart...

Open our hearts, Lord,
to joyful memories
of the love we shared
with those who've gone before us...

Help us tell the stories
that make the past present
and bring us close again 
to those we miss...

Teach us to lean on you, Lord,
and on each other,
for the strength we need 
to walk through these difficult days...

Be with us as we sing and cry our way
through Christmas cards and carols;
help us find and open the present you bring:
the gift of your peace
in the birth of the child Jesus...

And give us quiet moments
with you, Lord,
and with our thoughts,
our memories and our prayers...

Be with us, Lord,
and hold us in your arms
even as you now hold those 
who've gone before us...

Help us trust that one day
we'll be with those we love
when your mercy gathers us together
in the joy of your kingdom,
in the life you've promised us....

This is the Christmas you have made, 
the only one we'll have this year: 
help us to rejoice in it, Lord,
and in the blessings of your peace...

Amen.
 

Sleep in Heavenly Peace

Dearest Leo,

Well, the holidays are here and this year, we decided to stay here and celebrate. Last year, we ran away to Hawaii and escaped all of it. I remember it being so difficult to see the happy children and their parents celebrating the holidays. It was so difficult receiving Christmas cards with pictures of smiling families. I couldn't do it. 

This year, we will celebrate, but I'm still worried of the pain that will come with it. Christmas is about spending time with family and my family has been broken, part of it was taken away from me. Every little thing that is beautiful about Christmas reminds me of you. I was signing Silent Night the other day and was reminded of you, of the night that you were born...it was scaringly silent in that delivery room, but at the same time, it was such a beautiful moment to hold you in my arms.

Silent night, holy night!
All is calm, all is bright.
Round yon Virgin, Mother and Child.
Holy infant so tender and mild,
Sleep in heavenly peace,
Sleep in heavenly peace

I really wish you were here Leo so that we could celebrate together, shower you with gifts and kisses and take funny pictures of you in a Santa hat. My nights are silent, a little too silent and too calm. I know it wouldn't be the case if you were here. 

Well, until we meet again Leo, sleep in heavenly peace. 

 

Do you have any kids?

Dearest Leo,

It's been a while since I've written to you. Things got a little better for me and it was good to have a little happiness and excitement in my life. I started a new job and it all feels like a new beginning, a fresh start, an opportunity for more good things. 

But this week, I've thought a lot about you.  I woke up yesterday just wanting to cry. I don't know why...it could be that I'm being asked more than ever if I have kids. New job means new colleagues who are trying to get to know me...and of course, they ask if I have children. I sometimes say no...and then feel horrible about lying, about denying your existence, about not sharing you with the world. Sometimes, I say yes but that is followed by "but he passed away 13 months ago".  People say "I'm sorry, it must have been hard" and I just nod and say "yes, it still is". And the conversation comes to a screeching halt. Will that question ever get easier?

What's the right answer? I've asked a few of my bereaved friends and everyone has their own way of dealing with the situation. Some say "I have a child in heaven", others angrily answer "my son is dead" or share their stories...or deny it all. I don't think there is a right answer. As much as I hate lying when answering what otherwise should be such a simple question, I don't feel like everyone is ready or deserving of hearing about you. But at the same time, you're such an important part of me, that denying your existence is like lying about my own identity.  I just don't know what to handle this yet. 

 

 

Hallow's Eve

Dearest Leo,

Today is Halloween. Technically, it wouldn't have been your first since you were born on Oct 22 of last year...but it would have probably been the first that you would have dressed up for. 

It's been a while since I celebrated or really got into Halloween. It's not really an important date for me. It was different this year though. This afternoon, at the office, I saw so many cute babies and kids dressed up in the costumes. I saw parents so proud of their little munchkins, taking pictures and showing their kids off to others. The kids were adorable, all of them...and somehow, that made me sad. The worst, was went I went downstairs, near a daycare, and saw about 200 kids getting ready for a Halloween parade. It was a bit too much for me. It felt so unfair that all those kids gets to dress up and go trick or treating and that you can't. I felt angry at all those parents flauting their perfect children. I felt like screaming "I can't take my child trick or treating because he's dead".  I just wanted to get out of there. 

I didn't think Halloween would affect me so much. But here's yet another example of how sadness and pain can just sneak up on you when you least expect it. 

Halloween, which was historically called Hallow's Eve or All Hallows Day, is meant to be a day where as a day dedicating for remembering the dead. So I guess that technically, I have more reason to celebrate it than the other parents. I am spending my Halloween thinking about you Leo. Thinking about what life would have been like if you were here today, thinking about what you might be doing right now, and thinking about the day we'll meet again. 

Happy Hallow's Eve.


Happy Birthday Leo!

My little man,

I can't believe a whole year has gone by since the day you came into our lives. I'm unsure of how to feel today. I know it's not just another day, because it's your birthday, but you're not here and that feels the same as the 365 days that went by. 

Your dad and I decided to have a little party in your honor. We've invited our closest friends, those who were there for us when we were completely broken after losing you. I know it's strange for people to attend the first birthday of a baby that is not here; but we wanted to do something special, to celebrate your life and the gifts you've brought us. 

What's tough is that people don't remember the day a baby was born if the baby has died. No one will be calling us, sending you gifts, thinking about you People forget those who are not here. So, you, my dear Leo, only live in the hearts and minds of a few people: your parents and grand-parents. Though people will come tonight in your memory, I know that we're alone in loving and remembering you. Even after a year, we still feel alone in this.

I love how mother nature is so good at mirroring my mood. The skies are grey and apparently we're awaiting a rain or snow storm. I hope it's bright and sunny where you are.

We miss you.  

Changing your narrative

Leo.jpg

On October 7th, I attended Seattle Ignite, an event where a series of presenters get on stage and speak for about 5 minutes about a certain topic. Usually I leave the event feeling enlightened or amused by some of the funny talks. But on October 7th, I left incredibly moved by one of the stories I heard. 

Randy Scott was one of the speakers that night. His talk, titled "What it feels like to be hit in the face by a shovel", describes how he felt the day his daughter was born and the doctors told him that she had down syndrome. I immediately connected with Randy. My situation, is of course a litte different. When the doctors told me my son was going to die, I was a little bit in a haze and didn't really grasp what was happening. But when Leo actually died and the days and weeks following his death did feel like I was constantly being hit by a shovel...over and over again. 

Randy shared the news with family and friends and while most people responded with a sympathetic "I'm so sorry", his father-in-law responded with an enthusiastic "I can't wait to meet her". Most people were so focused on this little girl's diagnosis, whereas the father-in-law was focused on the good news: there's a new baby girl in the family! At the end of his talk, Randy Scott encouraged us to change our narratives...and I realized that I have in fact 2 stories to tell. 

The first, is a story of sudden death, injustice and pain. It's about the day that I was suddently rushed to the hospital and gave birth to my son prematurely. We were told, prior to his birth, that he had very little chances of surviving, and that if he did, he would be blind, have cerebral palsy, etc. etc. Leo was born alive but died in my arms 1 hour later. Shortly after we were asked by the social worker if we had thought about funeral arrangements. WTF! No one goes into labor & delivery thinking about funeral arrangements! We spent the night in the hospital, holding the cold body of our dead baby. This was our only chance to talk to him, sing to him, cuddle with him. He slept in our room. I woke up the next morning and tried to warm up his little body. We took many pictures of him. He was starting to turn blue. In the afternoon, it was time for us to leave. We had to hand our baby to the nurse who was going to send him to the morgue. We left the hospital without our son, crossing paths with happy parents taking their healthy babies home. We headed home and planned a funeral for our son, called our friends & family to inform them, put Leo's crib and all his things away....The next days and weeks and months were a nightmare. Grief strikes you when you least expect it. It sometimes manifests itself as anger, jealousy, pure evilness. It's comforting and ugly at the same time.  You feel powerless, weak, broken, empty and guilty. Oh so guilty. 

The second story is one of love. It's about the day my son Leo was born. He came much earlier than we expected. Was he that much in a hurry? Was he impatient like his mom? He was born fast, it wasn't a difficult labor. We knew that we wouldn't have much time with him, so we held him and studied him intensely. He smiled at us - he really did. He kept putting his fingers in his mouth and that made us laugh. Leo was also very hairy. He had my big eyes and his dad's chin, long eyelashes and the cutest little nose. He was perfect, so perfect. His fingers were thin and already had nails on them. He was small, but increadibly beautiful. Like most parents, we immediately fell in love with him. I instinctly knew when he took his last breath, but that didn't stop me from stroking his cheek and admiring this perfect little being we had created.  Yes, his life was short, but it was far from meaningless. Leonardo taught us the value of life. He made us parents. He taught us the meaning of unconditional love and made me realize that love continues to grow, even when your loved one is gone. 

When I tell people my son died, most feel uncomfortable - 'OMG dead baby alert, what do I do?'.  But when I think about Leo, I don't think about him as a dead baby. I think of him as my son, a son that has taught me so much and blessed me with his existence. What I went through is, of course, increadibly hard and painful...but it's not a heartbreaking story. Quite the contrary; it's a story about the deepest and purest love imaginable. 

 

The Pain-Happiness Combo

This has been a week of reflection for me. I've been struggling with little things that often seem not so little. And then I think back...so many things have gone wrong this year. How much more can I take?

It's sometimes when we are down that we come up with uplifting lessons for ourselves, isn't it?  I realized that this is my life. Of course, had I been given the choice, I wouldn't have chosen it exactly the way it's been given to me. I would have kept many things the same, but I would have deleted the part where my son died. But for reasons that are beyond me, these are the cards I've been dealt. This is MY life. It's not perfect and I'm sure, many look at me and feel relieved that this is not their lives.  I have to work with what I have, I have to somehow, overcome all this. Overcome losing my son, overcome any job problems, overcome the sadness and the pain and any other crap that might come at me.

I'm in no way a hero or a strong person. Going through something this horrible doesn't make you stronger. In fact, it breaks you in a million pieces and you patiently need to piece yourself back together.  And you don't always put all the pieces in the right places. Sometimes, you lose a few of them in the process.

This has been the toughest year of my life. Toughest than anything I've ever faced before and I hope to God that I will not face anything harder than this. And I'm not going to lie: there have been times where things got so horribly tough that the thought of ending it all seemed like the only possible way out for me. But despite all that horror, despite all that pain, I am happy. Yes, I am. I'm not sure how to explain this, it makes little sense, I know, but there are great things happening in my life. The thing is, bad things don't happen in isolation, they are often accompanied with a few good things. We just don't see them sometimes because in our minds this equation is always true: BAD > GOOD.

One of the things I am eternally grateful for is the fact that this tough year has brought my husband and I even closer together. We have a new appreciation for each other and our shared loss somehow solidified our love for each other. It's almost like we needed to fill the whole in our hearts with something positive, something sweet...and that's what our love for each other has done. In a book written by Anne Dauphine, a woman who lost her daughter at the age of 2 to a fatal genetic disease, wrote "when you cannot add days to your life, you should add life to your days." Inadvertently, this is what we have been doing.

Parents have grand dreams for their children, but mostly, we all hope our kid has a normal life. We all wish to see our kids take their first steps, go to school, graduate, get married, have kids, land a good job, lead happy lives. Those are universal wants. Those are simple wants. And yes, some parents will see their sons and daughters become president or Nobel Prize Winners...wouldn't we all love that for our children? But mostly, all we want is for them to have a normal and happy life. And it's this simple desire that makes the loss of a child so incredibly hard. Bereaved parents like me had those exact same dreams for our babies,  but we never got to see any of them come true.

As I sit here, pondering about life and death, I ask myself, 'what's the point'? When most adults die, we can say "he or she had a full life", "he or she accomplished so much". I can't say that about Leo. All I can say about him is that he was born a perfect little boy, that he smiled and that he died in my arms. What did he accomplish? What can we remember him by,  especially when none of our friends and family got to meet Leo?

Leo obviously changed our lives. And while his death is something I would eliminate, if I could, I am grateful for his short life. A lot of pain came with his death, but a lot of joy came with his birth. Those feelings were often mixed. I gave birth to him knowing that he would die. But I was also in awe of this little being, in my arms. This human being that we created. 

I still don't know why this happened (will I ever?).  I do know that Leonardo has changed our lives, that knowing him has made me better person. I also understand now that the pain will never go away, but that it is something that I have started learning to live with. I can be happy and hurting at the same time. It's possible. In fact, that's my everyday now.

Got my pictures

I love this picture of you. You've got the sweetest little lips and you're so hairy!

I love this picture of you. You've got the sweetest little lips and you're so hairy!

Dear Leo,

Well, it's officially been more than 10 months that you were born. It's hard to believe that a whole 10 months have gone by. I think your dad and I are doing fine, but often, things creep up and surprise us and suddenly, we're back to where we were the day we lost you. Back to the same pain and suffering. It's always unexpected though and sometimes, I am surprised at how little things affect me.

Today, we went to a church event. The members of my church have been very supportive and caring. We are known as the couple who lost a baby. People often come to us and tell us their loss stories. Tonight, an older man told us he lost his 23-year old grand-daughter and soon later, he lost his son. The losses are a little different, but they're just as painful. The one thing about the church, is that people do mention you, which I like.

A few weeks ago I wrote about a great organization called Now I Lay Me Down to Sleep.  I finally got some pictures back from the photographer. I received them on a day where I was really struggling with work, and then, all of a sudden, I saw pictures of your sweet face and it reminded me that work doesn't matter. Work is just work and it means nothing compare to what you mean to me. You always help me put things into perspective.

Me and you the day after you were born

Me and you the day after you were born

Kid's Birthday Party

Dear Leo,

On Saturday, I went to my first kid's birthday party after your passing. I didn't think much of it. I was going because it was my friend's child, he was turning 3. I've known him all his life and I wanted to be there to celebrate his life and life in general.

Everyone there had kids. Babies (from 4 months to 9 months), a bunch of 3-year olds and a few older kids (5,6,7 yr old). I was the only one without children. Everyone was busy feeding their kids, watching over them, or talking about parenting. I felt alone, empty, out of place. And then, came in my friend whose baby was born just a few weeks after you. I kept hearing 'he's 9 months'. NINE MONTHS. That's how old you are or would have been. It has been 9 months. I watched that baby and kept imagining how you would be. Would you be crawling like him? Would you be just about to talk like he was? For a moment, I thought about leaving. I seriously considered it. I really didn't belong there. Though I too am a mother, all the parents present had kids that lived. That's the main difference between us.

The best part of the party, was meeting a doula. She was a guest at the party. I learned a lot from here and am strongly considering hiring a doula for my next pregnancy. I need someone to be there with us, to help us think clearly and to really worry about our well-being (it seems that doctors worry more about not being sued than about their patients well-being).  I also told the doula about you. It felt great taking about you. I'm not sure many people would be willing to listen, but she did. So I too got to talk about my baby during this party.

Towards the end of the party, I was having a decent time. I played with some of the kids. I held some of the babies. I felt like I was able to overcome a huge obstacle. It wasn't easy. I'm not sure if I'm ready for another party. But I'm glad I took this step.

Your Picture and Complete Silence

Dear Leo,

We had some guests over yesterday for breakfast. One of the couples brought their twin boys with them. They were also supposed to be born in February 2014, like you, but were born about a month prematurely. It's a little weird to be around kids who are about the same age you would be. It just reminds me of all the things you would be able to do by now: roll over, laugh, smile, crawl. It still pains me that I will never see you do all that. I missed all your 'firsts'.  I am, however, still grateful for the smile you gave us when I  held you in my arms, shortly before your last breath.

A framed picture of you is proudly displayed on our TV unit. There's a picture of your dad and I back in 2008 and one picture of you. On that TV stand, we're really close to each other, all together, the 3 of us. I always worry a little when we have people over. Will they go close to the picture frame and ask us who that is? Will they say that you're adorable? Or will they ignore it completely? Well, nothing was said by our guests. I'm not sure if they didn't see it (highly unlikely) or if they just didn't know what to say. It saddens me a little. I wish they had said something, I wish they had acknowledged you.

Now I Lay Me Down to Sleep

There is a wonderful non-profit organization called Now I lay Me Down to Sleep. Their mission is: 

To introduce remembrance photography to parents suffering the loss of a baby with a free gift of professional portraiture.

Basically, when parents lose their baby (or babies), they can call Now I Lay Me Down to Sleet (NILMDS) and they will send a professional photographer who will take beautiful pictures of the baby and family free of charge. To some, this might sound a little morbid, but to parents who will never again have a chance to take pictures of their child, this is a God-sent!  Unfortunately, I didn't know about NILMDS before and the hospital staff didn't talk to me about this wonderful service. 

Being part of a Parent Support Group, I've seen many beautiful pictures of my friends' babies that were taken by NILMDS. The pictures, are all we have of our deceased child, and it means so much. I'm grateful that my husband took so many pictures of Leo, but I wish we had someone taking professional pictures...with the right lighting and setting. The right  clothes. Someone who would have taken a picture of the 3 of us. 

Last weekend, when I was sharing with another lady from the baby-loss community, that I regret not having professional pictures of Leo, she told me that I could send the pictures we took of him to NILMDS and that they would retouch it.  So I contacted NILMDS and they will do it! I'm so happy. The photographer said it would take a few weeks. I can't wait to see what the pictures will look like. 

I know I don't have the final product in my hands yet, but I am so incredibly grateful for this organization. I can't wait to hang a picture of Leo in our apartment.

Your Name on the Big Screen

Dearest Leo,

A few months ago, I contributed some funds for the making of a movie titled Return to Zero. It's a movie about a couple that have a stillborn son. It's a movie that is meant to break the silence, to help parents who have lost a baby and to help others understand what we all went through. The movie played on Lifetime TV a few times, but I was not able to watch it. Two weeks ago I received the DVD in the mail. I was so excited. I had been waiting a long time for it and it felt surreal to finally have it with me. There it was. I held it for a long time, wondering when I would have the courage to finally watch it. I had seen many previews, I knew this was a story that I would identify myself with... unfortunately. But I also knew that the message was powerful and that I had to watch it.

Well, I finally did. Today was the day. I sat in front of my screen, with a box of tissues by my side, ready to cry. Don't get my wrong, crying is not a bad thing. Sometimes, I need something to help me cry, something that will encourage me to let those feelings out... the feelings of pain, of suffering, of anger. And the movie did that, but it also made me laugh and it made me think. But mostly, it made me feel grateful. When I lost you Leo, I looked online for videos, movies, music that could help me. I looked for ways that could validate my feelings and comfort me...and found very little out there. I'm grateful that this movie came out, that it will help many bereaved parents and their families.

Obviously, I knew how the movie was going to end. I knew their baby would die. It's a little bit like watching the Titanic. You know there will be a catastrophe, and you're watching mostly to see how the events unfold, what happens after, how people get through the tragedy. While my story is different from that of Aaron (Paul Edelstein) and Maggie (Minnie Driver) in the movie, our endings are the same: dead baby, suffering, confusion, anger.

It might be strange for me to say this but I loved the movie. I am thankful for the director and actors for having the courage to produce such a beautiful and raw film. But I have to say, that to me, the most beautiful part was at the end...when the credits rolled. There it was, in white on a completely black screen: your name! Because I helped fund the movie, I was blessed to have the opportunity to put your name in the credits. It is so rare to hear your name, and even more rare to see it in writing. I was reading all the names of dead babies on the screen - gosh there were so many and that is so horrible! But I imagine that those babies' parents feel like I feel: really moved, grateful and happy to see our baby's name very clearly written in black and white on the big screen. It's a wonderful feeling.

This movie is for you Leo. 

Getting to Know Grief

My sweet darling Leo,

I have been reading so many articles written by and for the baby loss community, trying to understand and validate my own feelings and somewhat crazy thoughts. And thank God, I know that most of what is going through my head and heart is normal. 

But there's something new that I'm learning now, something that I haven't read about yet. I'm slowly getting to know grief, but most importantly, I'm getting reacquainted with the bereaved me, the me with grief. You know how 2 people in a relationship tend to change? Either through influence or through an active effort to become better or to please one another? Well, Grief is now my daily companion and she is changing me. 

Last night I went to a party where someone said "I've heard what happened. I'm sorry. You'll have another one soon." A few months ago, that comment would have upsetted me, but I've grown past that. I've always understood that people don't really know what to say because they can't comprehend the suffering that comes with losing a child, even if the child was in this world for a brief moment. But even though I understood that, it would hurt me deeply to hear others say that I could make everything better by replacing you Leo, with another baby.  It would sting and aggregate me. Yesterday though, it didn't affect me at all. I genuinely smiled, grateful that someone had said something to me about you that night. I know it came from a good place and that it must have been hard for her to approach me and say those words. 

One of my friends brought her 2-month old baby to the party. I couldn't wait to hold him. While I was playing and taking to that sweet baby, I also realized that I didn't feel any sadness. I didn't wish he was you. I was fully in the moment, enjoying that little boy. No negative feelings or thoughts came to me. It might seem trivial, but this is a huge step for me. 

I have had 30+ years to mature, but with grief in my life, I need to go through that process of growth and maturity again. I am making baby steps, but at least, those steps are going forward. I feel somewhat proud of myself for this growth.

Feeling Happiness for Others

Dear Leo,

I'm a little ashamed to say this because I'm your mother and mothers should be mature and strong...but here goes: I have a hard time feeling happy for all my friends who are announcing pregnancies or who are bringing perfect little babies into this world. It's horrible, I know. It's such a happy moment for them. I should know...I was happy too not too long ago. 

It's a weird feeling. In a way, I'm relieved that things are going well and that they don't have to experience the gut- wrenching pain of losing a child. But at the same time, I wonder why it's so easy for others. Why wasn't it this simple for me? Why? I'm still struggling with this one.

I got a call this week from a friend announcing a pregnancy. I said all the right things and asked the usual questions: "congratulations! How far along are you? When is the due date? How are you feeling? Do you know the sex? Will you find out? Etc. etc." I think I was able to hide the fact that deep down my heart was aching and my entire being was screaming "why!?!". 

This grief is complex to say the least. It brings out the worst in me, but occasionally brings out the best in me. Last week at my monthly parent support group meeting, one of the ladies who suffered a series of baby losses told me she was pregnant. I was genuinely happy for her! After all that she went through she deserves this and I hope that this time, things go right. I'm praying for her, her husband, and this new baby.  But why is it that I have no problem being happy for her but struggle to be happy for others? For those who haven't suffered what I suffered? Most of them are deserving of a child too. (Most of them). 

If I'm being honest with myself, I think I'm a little jealous. Jealousy is such and ugly and useless feeling. It doesn't amount to anything. But here I am, jealous of all the little perfect families out there. Jealous of those who get to take their babies home, jealous of those complaining about sleepless nights and the terrible twos. 

I'm not proud of it. I'm not entirely sure how I'm going to get over this ugly feeling.